Raised so far
Hours of care funded
The 99,000 Steps Challenge is a fundraising event for our national corporate partners, where participants complete 99,000 steps in a week and raise as much as they can for Together for Short Lives, supporting the UK's 54 children's hospices.
The number of steps taken represents the 99,000 children in the UK living with life-limiting conditions.
Families of children with a life-limiting condition are pushed to their limits. Our children’s hospices must not be pushed to theirs.
Complete your 99,000 steps in one week – a step for every child living with a life-limiting condition. Get involved with all your colleagues and track your progress on our online platform, with leader boards and fundraising pages.
Fundraise to support the UK's vital children’s hospice services. Everyone who raises £100 will receive an exclusive Together for Short Lives medal. You could top up your fundraising with your own donation too.
By taking on the 99,000 Steps Challenge you’ll support people like:
“Seven-year-old Toby lives at home in Buckinghamshire with his mummy and daddy, Kim and Tim. He has a complex neurological condition, which means he experiences very frequent and severe seizures.
In March 2020 the family were left in turmoil when both Kim and Tim contracted Covid-19. Before long, Toby caught the virus too, forcing the family into isolation while Toby’s seizures got worse and worse. Thankfully their Hospice, Helen & Douglas House were on hand to help them through: “It’s fair to say that without the medical support from Helen & Douglas House, we would have had to go to hospital, something we just couldn’t face in our poorly state. We owe them so much.”
Once the family were feeling better the hospice supported them with food items, toiletries and treats, as well as play therapy items for Toby: “We were surprised one evening by a team member from Helen & Douglas House at the door with a hamper full of treats, toiletries, toys and books. They really do go above and beyond.”
The family benefit from respite stays at Helen and Douglas House: “It is a relief not to be a constant carer. Helen & Douglas House is a lifeline. It is the best care we have ever had. It is how we survive.”
Five-year-old Aidan is a happy, dinosaur-loving boy with a vivid imagination. He was born with a rare abnormal growth in his windpipe that affects his breathing, eating and speech; a condition known as cystic hygroma.
Caring for a child with complex medical needs like Aidan is a huge challenge - and even more so in a pandemic. The last year has been like a pressure cooker for the family. Hard decisions have had to be made to protect Aidan and keep the risks down in the family home. Mum Carly has had to turn to friends and family for basic things like shopping.
The support and respite care the family depended on from Alexander Devine Children’s Hospice had to pause. All the things that brought Aidan so much joy – paddling in the hydro pool, baking, painting - disappeared. They were exhausted, isolated and stressed.
They learnt just how much their local children’s hospice impacted on their life and never want to be without it again.
When mum, Charlotte, was rushed to hospital in an ambulance at 33 weeks pregnant, her first thought was not for herself, but who was going to care for her nine-year-old daughter Aimee, who has quadriplegic spastic cerebral palsy, a life-limiting condition that requires constant medical care.
Acorns Children’s Hospice stepped in to make sure all the family got the care they needed at this tough time; offering emergency care for Aimee and providing regular food deliveries during lockdown.
Charlotte can’t speak too highly of Acorns and the support they give to her and Aimee. “I just know they’re fantastic with Aims – she loves it there every time she goes, and for me it’s just such a help and a chance to get a break. It’s what they’re there for, they put my mind at rest, and I just can’t thank them enough for all they do for us.”
Acorns were there for Charlie when she was pushed to her limits. This Children’s Hospice Week let’s make sure that children’s hospices like Acorns are never pushed to their limits.
East Anglia Children's Hospice's Specialist Nurse
Every day, my teams of nurses, therapists, wellbeing mental health specialists and carers do whatever it takes to support families of seriously ill children. From driving cross-country to provide hands-on symptom management or end of life care to a child, or adapting to social distancing by delivering counselling online rather than in-person, there are no limits to what we will do to deliver the best care.
A perfect storm risks children’s hospices being pushed to our limits.
Thanks to the wonders of medical science, more and more children are living longer with serious conditions. This means more children and more families in urgent need of the holistic, medical and emotional care our hospices provide.
To meet that rising demand, we need support to recruit more staff, invest in training, expand our services and keep up to date with the latest innovative medical technologies that supports the best care possible or keeps children safe and well or ensure comfort at the end of their lives.
Children’s hospices are charities and while we receive some funding from Government we are almost entirely dependent on the generosity of people like you. Without people like you, supporters who care deeply about how families of seriously ill children are pushed to their limits, we really will be pushed to ours.
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