99,000 Steps Challenge

A step for every child with a life-limiting condition

Raised so far


Our goal


Total Steps


Hours of care funded


The 99,000 Steps Challenge is back and we’re calling on our superstar supporters to take on the challenge and raise as much as they can for Together for Short Lives and the UK’s 54 children’s hospices.

Complete 99,000 steps in a week, with every step representing the 99,000 children living in the UK with a life-limiting condition. Families of children with a life-limiting condition are pushed to their limits.Our children’s hospices must not be pushed to theirs.

Join us by taking on the challenge today.

How to get involved


Complete your 99,000 steps in one week – a step for every child living with a life-limiting condition. Get involved and step your way to the top of the leaderboards.


Fundraise to support the UK's vital children’s hospice services. Everyone who raises £100 will receive an exclusive Together for Short Lives medal.

Every step counts for families like Harry's

Harry's story, as told by mum Lucy,

"Having a child with very complex needs, you can feel like you are standing on the outside looking in."

13 year old Harry lives in Chelmsford with his mum and two younger sisters, Iris and Florence. In 2010 Harry was diagnosed with Leigh’s Syndrome, a type of Mitochondrial Disease that means he is not likely to reach adulthood. The family have been visiting Little Havens Children's Hospice for respite breaks since 2014.

“At the time of being referred to Little Havens, I couldn’t get my head around the fact that going to a hospice was going to be a positive experience – how wrong I was! It’s a place that is always filled with so much love, laughter and fun, even though every family there is facing the fact that there is no cure for their child’s illness.

Their local hospice gives them much-needed time and space to be a family, where everyone understands what it's like to live with uncertainty day after day, and accepts you for who you are. That quality time means the world.

“Harry is literally the happiest boy I think you will ever meet. Without ever uttering a single word he has taught me more about myself and the world we live in. He has taught me what is important and what’s not" 

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Ready for the challenge?

Sign up to our 99,000 steps challenge today - and take a step for every child living with a life-limiting condition in the UK.